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Webinar: Getting Treatment Options to Rare Disease Patients Faster: Putting Patients First in Clinical Trials

February 28, 2018 @ 11:00 am - 12:00 pm

The theme for Rare Disease Day, February 28, 2018 is “research.” In clinical research, the relationship between patient and researcher is symbiotic – the patient community needs researchers for cures and treatments and researchers need patients to participate to ensure meaningful outcomes. With rare disease, this relationship is intensified on both sides: patients and their caregivers often have few treatment options while researchers have a smaller pool of potential participants.

Join us on Rare Disease Day as experts from Medpace, a global clinical research organization, and Cincinnati Children’s Hospital Medical Center discuss how patient-focused clinical trial design and collaborative approaches to site enrollment can accelerate clinical research. Attendees of this webinar will also hear from a parent of a child with Duchenne’s Muscular Dystrophy (DMD) to understand the impact of research on her family, what it means to be an advocate, as well as the personal challenges.

Key topics include:

  • Bespoke trial design – like the rare disease itself, each trial demands unique customization. We’ll discuss the considerations, challenges, and strategies that work
  • Putting the patient first – Patient-centricity is more than a buzzword. How early planning, open communication, and well-executed operations can drive success for patients and researchers
  • Optimizing patient recruitment to accelerate research today – and trends for tomorrow
  • CRO and site collaboration – best practices
  • A Family’s Story – A parent’s personal experience navigating clinical research for her son with DMD—What she’s learned as well as advice for both researchers and parents

Who Should Attend?

VP’s, Directors, Managers and Department Heads working within:

  • Clinical Affairs
  • Clinical Research
  • Clinical Pharmacology
  • Clinical Outsourcing
  • Project Management
  • Regulatory Affairs
  • Medical Affairs
  • Advocates & Researchers of Rare Diseases

Click here to learn more and register.