BioOhio is proud to present an amazing line up of speakers and ambassadors for the 2019 Patient Summit. Below you will find brief biographies and links to their respective organizations.
Justice Evelyn Lundberg Stratton, Retired Ohio Supreme Court | Project Director, Stepping Up Ohio
Evelyn Lundberg Stratton retired from the Supreme Court of Ohio in 2012 after 23 years in the judiciary to pursue criminal justice reforms, particularly as they relate to mental health, juveniles, and veterans. She came to the bench by a very different route. Born to missionary parents in Bangkok, Thailand, Stratton spent her childhood in Southeast Asia. She attended boarding school in South Vietnam at the height of the Vietnam War and later in Malaysia, visiting America on occasion with her parents. At age 18, she returned to America alone, and with only a few hundred dollars in her pocket she earned a Juris Doctor degree from The Ohio State University College of Law. Stratton believes that the courts, in partnership with the mental health system, can affect positive change in the lives of many defendants whose mental illness has led to criminal activity. Stratton also is the Statewide Project Director for Stepping Up Ohio, a national effort to reverse the trend of jails being the de facto mental health facility for those who cycle in and out of the criminal justice system.
Speakers (in order of appearance)
John F. Lewis, Jr., President & CEO, BioOhio
John F. Lewis, Jr., is a licensed attorney with experience in international business, venture capital investments and economic development. John is an outspoken advocate for industry led, market facing academic/industry collaborations. During the last 16+ years with BioOhio, John has helped raise nearly $1 billion for Ohio bioscience entities. He was a founding partner of the First Fifty Fund and Ohio TechAngel Fund both based in Columbus. John is a graduate of Miami (Ohio) University and Capital University Law School.
Shortly after his freshman year of college while on summer vacation with a group of friends an ill-fated dive into a wave off the shores of the outer banks in North Carolina render him a quadriplegic. Since then he has participated in neural bridging research study by having an implant in his brain in a clinical trial, Reanimation in Tetraplegia, through The Ohio State University Wexner Medical Center and the Battelle Memorial Institute, which has restored some movement in his right hand. Ian received the inaugural Brain Health Hero award in 2017 from the OSU Stanley D. and Joan H. Ross Center for Brain Health and Performance.
Dr. David Friedenberg, PhD, Spinal Cord Injury Research, Battelle
Dr. Friedenberg is part of the team that is developing the NeuroLife technology platform to help spinal cord injury patients regain some movement in their paralyzed hand. A tiny chip is surgically implanted in the brain to listen to brain activity related to movement. The team then takes those signals and decodes them; translating them into intended movement commands which are sent to a sleeve on the patient’s arm which stimulates the muscles to evoke the desired movement. The system effectively bypasses the injured spinal cord, reconnecting the mind to the paralyzed limb.
Kelly Maynard, President and Founder, Little Hercules Foundation
Kelly launched Little Hercules Foundation on January 1, 2013, after her youngest son, Jackson, was diagnosed with Duchenne Muscular Dystrophy at the age of five. After desperately searching for a treatment for her son, only to find none, Kelly decided to leave her career and invest all her time and energy toward Duchenne. She serves on pharmaceutical advisory boards, advocates with regulatory agencies regarding drug approvals, develops critical partnerships within the Duchenne community, and testifies for legislation that directly impacts families and patients living with all rare diseases.
Cathy Patten, Director Patient Services, Cardinal Health Sonexus™ Access & Patient Support
Every day Cardinal Health helps patients get on their prescribed medication or therapy. Some people just need help with paperwork and understanding the process, others need assistance with insurance, while others may have financial hurdles that we help them overcome. There are so many resources provided by drug manufacturers that patients and healthcare providers do not know about. It is rewarding to help those in need — especially when it can be life changing for someone on a long-term therapy.
Aaron Boster, MD, Medical Director, Multiple Sclerosis Center | System Medical Chief, Neuroimmunology, OhioHealth
Dr. Aaron Boster drives the execution of a revolutionary model in MS treatment and patient care drawing on interdisciplinary resources at OhioHealth. Dr. Boster rchestrates leadership and administrative duties and meets individually with patients and families to address their needs as they happen.
Jenny Camper, RALI Ohio, Safe Drug Disposal
RALI Ohio and its partners support a broad range of programs to address substance misuse, including prevention, treatment and recovery services. Initially, we are focused on providing tools to enable the safe disposal of unused prescription medicines and raising awareness of the warning signs of opioid misuse.
L. Scott Clay, Diabetes Ambassador
Diabetic Wound Treatment/ In-Home Health Care is essential for patients like L. Scott Clay who are not able to take care of wound cleaning and dressing on their own. These skilled professionals have supported Scott and his family during the critical healing process. They provide a lifeline between patients and physicians and quickly become part of the family.
Judy Huang, CEO, 889 Global Solutions and Glaucoma Ambassador
Judy Huang has had glaucoma for about 15 years now and has recently purchased an icare product which can measure eye pressure. This enables her doctors to have more frequent pressure reading vs only on office pressure reading. This has dramatically improved the doctor’s care with more data points. “I have taken more of the care and put it into my own hands and assisted the doctor to be more agile”.
Kristin Kerwin, BSS, RN, LAM Foundation
When Kristin was diagnosed with LAM six years ago, there was absolutely no treatment, no cure and no hope with a projected lifespan of five to seven years. With the recent FDA approval of Sirolimus as a treatment drug to slow the progression of cyst formation in her lungs, she has been provided with not only hope for a brighter future, but also with hope for a cure.
Annie Ross – Womack, Executive Director, Ohio Sickle Cell and Heath Association
Annie has been the Executive Director of the Ohio Sickle Cell and Health Association since 2017. She is an experienced, goal-oriented individual with a demonstrated record of accomplishment in various fields expertise. Incorporated in 1979, the Ohio Sickle Cell and Health Association was established from the need to provide a payment mechanism for adults with Sickle Cell Disease who were medically indigent; with the focus, and intent to solve Sickle Cell Disease, in the context of broader, societal issues, facing Ohio’s children, minorities and poor.
Rosemarie Rossetti, Ph.D., Spinal Cord Injury Ambassador
On June 13, 1998, Rossetti’s life was transformed when a 3 1/2 ton tree came crushing down on her. Paralyzed from the waist down with a spinal cord injury, Rossetti looked deep within herself and found new strength and new resolve. Rosemarie has used a manual wheelchair since her spinal cord injury. Her current Quickie 7R Model is lightweight, custom fitted, and equipped with telescoping push handles making it easy for my 6’4″ husband Mark to push her on steep terrain. The Natural Fit handrims have a great ergonomic design giving her an effective hand grip for pushing my wheelchair.
Angela Snyder, Voters for Cures
Voters For Cures is the leading voice for patients and those who care for them. We all want to know that innovative new medicines will be there when we need them, but too often individual patients have a hard time making sure that their voices and stories are heard. Our mission is to support medical progress and the polices that make new medicines possible. We advocate for proposals that support the next generation of treatments and cures and make sure people can get the medicines they need.